Thursday, March 10, 2011

The worst day of my life….

So far anyway. Tomorrow will be worse I am sure.

Yesterday we had Olivia’s appointment down at U of M Children’s Hospital. I went into the appointment SO optimistic. I really thought that they would just be confirming what out peditrition and ENT had diagnosed as Laryngomalacia. I thought that they would just check, confirm, tell us that she would grow out of it, and send us on our way.

I was wrong, WAY wrong.

We started the morning in Radiology. They were going to do a GI Chest Fluoroscopy and a Swallow Study. It was so sad. They strapped her up on a wall for the invasive x-ray part. She just hated it. She was screaming so much that she was turning purple. Next they strapped her to a board and strapped her head down, legs down, and arms above her head. She looked so uncomfortable. The made her drink this white chalky looking stuff and looked at how it went down into her tummy. She hated it and spit most of it on the table.

Next we were off to see the ENT. I was still optimistic at this point, b/c the Radiologist said that things looked good.

Once we got in to see the ENT they were nervous about her weight (or lack thereof). I have never been too worried, b/c Blake was a peanut too. She IS gaining weight…just not very fast. The ENT took a scope and went up her nose and down her throat. Right away you could see a big mass at the base of her trachea….this is where things went downhill…fast.

He said that he would have to remove it. BUT, before removing it he needed to make sure that it wasn’t her thyroid. I guess that babies start out with their thyroid up in their throat and then it descends to its regular position before they are born. In RARE occasions it does not descend.

We had to have a nuclear test done to see if it had thyroid particles. This test was terrible. They had to inject her veins with a dye. They could not find a vein to get into anywhere. They tried both hands, then a foot, and then finally got it into the crook in her elbow. It was dreadful to watch that needle prodding around in her. Once the dye was in we had to get her to relax and fall asleep. Again they strapped her down and did the test. This test took quite a while.

After that we were back up to the ENT. This place is HUGE….so I bet we walked 5+ miles yesterday. The ENT confirmed what he said was GOOD news…and it was not her thyroid. SO, he went ahead and scheduled surgery to remove it……TOMORROW. This is just all so fast and scary. He isn’t quite sure how surgery will go…b/c he will not know what the mass is like until he gets in there. Hopefully it is soft and he can remove it. We worry that it may be hard, or have blood attached…there is also a chance that he will have to give her a tracheotomy during surgery. The thought of that makes me ill.

After scheduling the surgery we had to go to pre-op. An anistegeologist looked her over to determine if he could put her under for the surgery. He thought that he could…and mentioned a big vein in her head that would be good for an IV. I can’t imagine seeing her with an IV in the head .

Next we talked to Social Workers about what we were feeling and going through. I think that at that point I just felt confused and scared. It was just so much to learn ALL in one day. Like I said, I had NO CLUE going in. I think that it may have been different if I could prepare myself a bit.

Next we were off for blood work, to make sure that her counts are good enough for surgery tomorrow.

SO…we are home for a day…and then back for the long haul. They think that she will be in ICU for a few days…and then who knows. Please pray that everything goes as well as it can go over the next few days.


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42 comments:

Mrs. D said...

wow. I am so sorry. I will be praying for your sweet baby girl.

Lexie Loo & Dylan Too said...

I'm so sorry you're going through this. My thoughts and prayers are with Livi!

Jessica said...

I hope all goes well with your sweet girl! Praying for you all!

Miss Chelsea said...

Oh my gosh... how horrible. That poor little girl!

Erin said...

oh Annie.. I am in tears for you guys! I am so sorry that you are going through this and you will be in my thoughts all day and all day tomorrow. I will be worrying so please please try and keep us updated some how any way.

I truly hope that surgery goes well and that everything will be on the up after this.

Love you girl!

Brandi said...

I am so sorry that she and you all are having to go this. I will keep you all in my prayers.

Mr. and Mrs. Smith said...

Oh, Annie! I'm so sorry about all of this! Thinking of and praying for your sweet girl and your family! xoxoxo

Becca said...

Oh! My heart aches for y'all. I will be praying for that sweet girl! Please update us when you can!

Heather said...

I am so sorry! We will definitely be thinking and praying for you all! My heart just hurts for you all!

Megan said...

How sad :( I will be praying for you and your little girl!

Caro said...

Oh Annie, I will pray for you and your family tomorrow.

Jenn @ West Sac Honey said...

Oh Annie my prayers are with you guys today! I hope she does beautifully she'll be okay! XO

Jaimee Cotter said...

Annie & Ryan,
Stay strong mommy & daddy for your little girl. She is such a doll! I can not imagine what this is like for you guys, it was hard for me just to read your post. Your entire family is in my thoughts and prayers.

Keli said...

I'm so sorry. Poor little thing. I'll be thinking of you guys.

Jessica said...

OMG i cant imagine you poor thing, thats a lot to handle all at once in one day! Then to have surgery right away I can understand why you would be overwhelmed.....praying for you guys! Hang in there!

Annie said...

oh hun, i'm so sorry to hear this.
i will be praying for your sweet baby girl. stay positive hun. keep us updated. sending a big hug to you!

jenn said...

i am sorry you guys are going through this..you guys are in my prayers

Mrs.Vid said...

Praying for you all. I'm so sorry that you're all going through this!

Neely said...

OH NO ANNIE! I am so so so sad for you guys. Praying as much as I can. Please let us know if we can do anything. Love you!

Jessica said...

Poor baby! I will be praying for y'all!

Melissa said...

I am so sorry you're going through all of this. I will keep both you and your little girl in my prayers.

Mrs. Mama said...

aw Annie, this brought tears to my eyes. Will be thinking about you, your baby girl, and your family tomorrow.

Jessica said...

Praying for your sweet little girl! She will be just fine! God takes care of the little ones

Lea Liz said...

Oh no, I am so so sorry to hear this! I will defintily be praying her and for you sweet mama!!

Mommy's Sippy Cup said...

Oh, sweetie! I am so sorry and will be keeping your family in my prayers.

Ashley said...

Thinking of you and your family. I hope all is going well for your sweet baby girl.

MP Photography - Custom Photography by Miranda Parker said...

Ugh, my stomach was in my throat just reading what you went through yesterday, watching your baby go through so much. I'm so sorry and I'll be praying tomorrow goes well for little Olivia and for peace to calm your nerves as well.

Miranda

Kristin said...

I'm so sorry. Praying for your sweet baby!

Kristin said...

Prayers are with you and your family and your sweet little girl.

Kristen said...

Oh my goodness, how scary! I am thinking of you and little Liv and hoping the surgery goes smoothly!

Shelley said...

Oh my gosh I am so sorry that you and your family are going through that. My prayers and thoughts are with you and your sweet baby girl.

Heather said...

I'm so sorry Annie! I will be thinking of you all.

Ashley said...

Praying lots for your baby girl!

Scientific Housewife said...

I'm so sorry sweetie, I hope that everything goes well and she is back to normal in no time! Stay strong, for yourself and for her!

Jen said...

Praying for you and your sweet little girl xo

New Mommy!!! said...

Oh Baby Girl, I have tears streaming down my face. Poor pumpkin, are you alright. You are so brave, be brave fo her, she needs you. My heart is breaking for you all. HOw horrible that she had to endure all these tests and poking and prodding. I am just sick. I am grateful that you were able to discover the issue and that they appear to be very educated and informed on what is going on in her little body. I know that everythign will be alright. I am praying for you all. Keep us updated when you can. We love you. Love to your baby Girl. Hugs to you. XOXO God Bless.

Laura@Cowboy Boots said...

hey friend...my first had 4 surgeries in the first 21m of his life...i know all too well the sadness and worry you are feeling...big hugs and prayers

Meant to be a mom said...

I'm in shock over here.
I've been way behind. I'm so so sorry to hear what's going on. I promise to pray for her so much.
I don't blame you for being so worried. I sure hope that whatever it is they have to do will fix her problems and she will be healthy as can be.

Thinking of you guys. HUGS!

3LittleMonkeys said...

Oh my gosh, I can't imagine receiving that news and then having to see your precious little girl go through all of that! Sending positive thoughts and prayers your way!

Ashley said...

Oh my gosh! I am so sorry! I will be praying for all of you. B had an IV in his head for a few days and it's definitely so sad and scary to see. :)

Paige said...

Goodness poor Annie. I am just now seeing this and am so thankful that everything is okay. I can never imagine how scary this day was for you, Olivia and your Husband. I hope you never have to go through it again. Loves!

Claire said...

oh my, i'm so sorry to hear about your little girl. i will pray for your family. i know it must be so hard to go through all that. please take care.